Category Archives: hair loss

Denial

The inside of my purse, after my head was shaved, after I took the “non-essentials” out:

bald heads don't need brushes ;)

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Crowning glory

Many thanks to PdxLeeAnne from the breastcancer.org discussion boards for the video to the Crowning Glory hair-raising drive for Burning Man 2007. My naturopath had mentioned this on Friday, asking me to donate locks of my hair. Heck, donate?! Of course, but now I want to go! If you go to Burning Man, please take video for me.

The main message: “Remember, you are not your hair.” Yep, I get that, having spent the last week bald. And bold. And you know what else? Feeling really confident and beautiful. Somehow I suspect that my hair before didn’t do me justice. I can’t pin it down exactly because I loved my hair, but somehow this is better; at least for now, it feels really, really good.

And the message at the end:

donate, collaborate,

immolate,

and then regenerate.

Wow. Those last two lines are the essence of the experience – first to literally destroy the cancer cells with the immolating power of chemo, to throw myself into that fire, and then to regrow the good cells destroyed along with it, to re-form or “create anew” my quality of life and my survival itself. What a great vision, to regenerate. I think I like the last definition (see link above) the most: “Restored to a better state; refreshed or renewed.”

BTW, I found a mandala painter to henna my head when it stops hurting. Check out the designs at the end of the video, the bejeweled head… 🙂 Might as well, right?

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Filed under breast cancer, chemo, hair loss, quality of life

The scarlet scarf

During this round of chemo feeling better started at day 8. That’s when I started doing normal things like going to the grocery store. Of course, this time I have no hair. Scarves and buffs are my headgear of choice these days, and they’re pretty darned comfortable. In fact, so comfortable that I sometimes forget about not having hair because I do in fact have something on my head.

However, my scarf-clad head seems to be the scarlet letter equivalent of having “cancer” emblazoned across my forehead. Twice now I’ve had the odd experience of having heaps of extra attention lavished upon me at the grocery store. Hey, I’ll take it, but both times it took me a while to figure out why staff were being overly helpful.

Maybe it’s because I love going to the grocery store that I forget about my lack of hair. Shopping for food is a zen experience of being utterly absorbed in the color of fruit, the smell of fresh bread, etc. And these days because food in the chemoverse tastes different, it’s as if every food is new, so there are just a lot of choices to make. It’s very successfully distracting.

By the time I go to check out, or deal with staff making a beeline to help me, I’ve totally forgotten about my appearance. Since the level of customer service has risen so much, I’m pretty stunned by the service, and then I remember: Yep, now it’s clear to the world that I’m going through chemo.

So I’m happy to report that being bald has its advantages. Now, if only all the stubble would finally come out!

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Life in the chemoverse

….is pretty darn slow. Today is day 6 of round #2 – as the nurse said today when I called, I’m almost 1/2 way through with the A/C. Still feel like crap, but actually went to work today, thanks to the miracle of acupuncture. So, things are looking up. Plus it’s gorgeous outside. Can’t wait for days 10 -14 when I actually feel slightly normal. Day 6 is when my tolerance for sweet things starts to come back, so I can actually drink juice, recharge etc. So, a good day.

And many thanks to my cousin for shaving my head – it hurts a lot less. Prickly, but the sports buff that Jen got me hugs my head gently, so that works. And boy has the customer service picked up everywhere I go, as if I have the word “cancer” written across my forehead. I’ll take it – I need all the help I can get. 🙂

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Grand follicular exodus :)

It’s begun! Running my hand through my short, short hair and it comes out….YIKES. Off to shower in a bit once Mariana is awake and can come over for coffee and support. This is Day 4 of chemo #2, pretty shaky but taking things an hour at a time. My hair hurts, which is why I’m up this early.

Many thanks in this past week to Lizzy and Mariana for taking me to appts, and to Karen, Jan and my uncle for food, and to all for TLC. And a special thanks to Hallie for 2 more excellent CDs, and to Jan for Balkan music as well.

Quick update on team care:

#3 May 31 – June 2 – Mariana on Thursday; Kim, Jeannie? on Friday

#4 June 14 – 16 – Alicia

#5 June 28 – 30 – Heidi

#6 July 5 – 7 – Mary

#7 July 19 – 21 – Jen

#8 Aug 2 – 4 – possibly Vicki

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Rites of passage

It was the hair falling out into my breakfast cereal that did it. I wasn’t sure at all about cutting off all of my hair, cutting it shorter than many boys, but then I was eating breakfast and all of a sudden there was hair in my food. And it was my hair. Aaargh. Super-annoying to say the least.

I know it’s hard to wrap your head around the image of me with hair that is so short – 1/2″ long, but try this: imagine my head as if I were becoming a Buddhist monk, disavowing vanity, embracing a simple aesthetic in order to focus on a sacred life. Or, alternately, imagine me as a soldier just starting out, my individuality stripped, the groundwork laid for the process of transformation that allows one to fight.

I think my favorite image is from a friend who as a young 20-yr old cut her hair super short as part of the process of coming out. She said the surprising effect was that it opened the top of her head, her crown shakra to the energy from the sky. I think maybe that’s the most positive image: imagine my crown chakra now more connected than ever before to the sky, imagine all that sky life-force energy pouring in. And pulling me up.

So sky-energy and a sacred fight, literally for my life. It’s this part of the treatment, much more than surgery, that feels like a real fight – this is where the term “survivor” comes from, because this part, this is all about surviving. Just having the right to breathe. There was a point last week when I felt like I was dying, like the cells inside me were dying, which was very, very scary. I don’t know that I’ve ever felt that bad before. I wanted to stop chemo, but that felt like choosing not to survive, which felt just as bad as choosing to continue, except that we know that choosing not to finish chemo is in the worse choice. So I’ll continue, and maybe this next round of chemo won’t be so bad.*

But now I have the sky-energy on my side, so that’s got to help, right? Also, somehow it feels right to be physically transformed in such a visible way – like having a broken arm and having a cast on it. This says to the world: hey, there’s something going on here. Which is true.

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* NB: So hey, don’t go getting all sad – just FYI, my prognosis is very, very good. I am NOT dying. Got it? Ok, so don’t go getting melodramatic on me. Just stop that thought track right now. I have such a good prognosis that I don’t talk about it much because in the universe of breast cancer there are so many who are so much worse off that it seems in bad form to talk about my prognosis. So I don’t. Just so you know. If anything is dying, it’s those damn cancer cells.

And my hair. And my gut lining. The latter two are however temporary and fixable. The long-term view here is the one that works. Imagine me being 80, with beautiful white hair.

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Shaving my head on the 14th

Many thanks to my cousin Laura for scoring a gorgeous wig for me, and to the hairdresser she works with for styling the wig today. What sweethearts. When I want, I can look like myself – the color and style are amazingly like my own.

I’m set up to have my head shaved on the 14th in the morning; my friend Hallie has this very cool hairdresser who used to live on a commune, she’s a sweetheart. And I really like the salon, just a very comfortable funky place. It makes me calm to be there. So I’m happy having her shave the locks. Actually I’m a little excited about it – it feels slightly shocking, which this whole experience should be, there’s something about being changed on the outside rather than pinkwashing* it (making cancer seem ok on the surface, when really it’s not). ….somehow it feels like it’ll actually be closer to being really ok if I look more changed….and it’s a chance to be a little radical and do something I would never would other wise do.

But I’m sure as heck going to want a great head covering coming out of the appt!! Which is why my friend Jen is sending me buff headwear – Thanks Jen!!

And to my mom for coming up for chemo tomorrrow. And to my aunt and her friend Steve, and my new internet breast cancer friends for all their tips on getting by and getting through. Because it’s scary as hell but I will get through it.

Finally, many thanks to Hallie and Mariana for making CDs to go to chemo by. As Mariana says, I will “breathe through my ears.”

Hugs to you all, wish me luck.

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* footnote: though Barbara Ehrenreich doesn’t use the phrase “pink-washing,” it is, in essence, what her essay Welcome to Cancer Land is about. To understand the following quote, know that it starts out with her rage about being given a pink teddybear when diagnosed with breast cancer:

“No, this is not my sisterhood. For me at least, breast cancer will never be a source of identity or pride. As my dying correspondent Geni wrote: “IT IS NOT O.K.!” What it is, along with cancer generally or any slow and painful way of dying, is an abomination, and, to the extent that it’s manmade, also a crime. This is the one great truth that I bring out of the breast-cancer experience, which did not, I can now report, make me prettier or stronger, more feminine or spiritual-only more deeply angry. What sustained me through the “treatments” is a purifying rage, a resolve, framed in the sleepless nights of chemotherapy, to see the last polluter, along with, say, the last smug health insurance operative, strangled with the last pink ribbon. Cancer or no cancer, I will not live that long of course. But I know this much right now for sure: I will not go into that last good night with a teddy bear tucked under my arm.”

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